Monday May 6th
10:30 am registration 12:00 Tee Time
Deerfield Golf Club
Since MPS-III is a rare disease (only 1 in 70,000 births) much of the research that has been done has been privately funded by dedicated groups of parents. We are raising funds to contribute to find a cure and treatments for Michaela and all kids like her who have this terrible disease. We also raised funds to offset the cost of her care and help us support her as we live far from home for her to participate in a study that could save her life- expenses like travel, health insurance, and medical supplements.
This Golf Tournament is a way for us to help raise awareness of Sanfilippo Syndrome and to help support the medical bills for Mickey.
Learn more about The Golf Tournament HERE: planmygolfevent.com.
And learn about Mickey and her plight HERE: savemickey.com.
By visiting this site you are agreeing that you are over 21 years old in age.